There comes a point in
everyone’s life that we realize we have little to no control over our lives. We
reach a point where we cry “uncle” and choose to either give up or to hand our
lives over to the one who created us. We choose to let go of the control and
somehow learn to enjoy the journey we are on. We stumble, we stray, but
ultimately we view life (and the junk that comes with it) with a brand new
perspective.
It took me until I was 28
before I realized that I ultimately did not have control over all of the things
I so desperately tried to control. And the way God showed himself, the way I
learned that very little control was mine to have, was filled with heart ache
and pain I never knew existed. I felt unprepared for the journey God had planned
for me, but as the months and years unfolded, I learned He knew what He was
doing. Don’t get me wrong, I doubted and questioned. I threw temper tantrums
and hissy fits. My strong and incessant need to be in control got in the way
often. But somehow, I always managed to come back to Him and the knowledge that
He has a much better plan for me than I could ever imagine.
The plan I had for myself was
a good plan. It was a plan filled with a husband, children, a job I loved,
friends and ministry. I had gone to college and gotten my degree in Behavioral
Science. It was a perfect fit for me, as I have always been intrigued by
behavior. This degree was my doorway into working with children with Autism. I
spent forty hours a week in children’s homes teaching them skills and building
relationships with their families. It was hard work, and often times not very
rewarding, but I loved my job. I thought I was on the right track…
And then my personal life
began to come together. I dated, courted and then married a man that had the
same kind of plans for life, filled with children and friends and ministry.
When I married Kevin, I moved to Pennsylvania (which was where I went to
college and swore I would never return to). Life was good. Kevin and I started
talking about having children and it wasn’t long after that we were pregnant
with our first son. We could not have asked for a better life. Our plan was
falling into place and we thought we had it all together.
It wasn’t until about 6 months
after our first son, Patrick, was born that I started to realize I didn’t have
as much control as I thought. We had learned that we were expecting baby number
2, and this was definitely NOT part of our plan. I was scared, my husband was
freaked out, but we came to a place where we were excited for our unexpected
baby. 4 months into that pregnancy, we were reminded again that we have no
control… We lost our only girl to a rare genetic disorder that we knew nothing
about. The grief over her loss was immense. It was a time we had thought we would
never survive.
But we did survive. In fact,
several months later, we were ready to try for another baby. Our first son was
almost 2 years old when Tyler was born. Our family was growing, we had
survived a very heart breaking loss, and I thought we had it all together. I
thought I knew where our lives were headed. Boy was I wrong… I had no idea how
greatly our lives would be turned upside down in the coming years. I was oblivious
to the journey that my family and I were about to embark on.
In May of 2009, the life that
my husband and I had planned and were looking forward to came to a halt. The
dreams we had for our second son seemed shattered as we learned that he had
significant delays. At no point in our planning did we ever think that daily meltdowns,
weekly therapy, and a constant struggle to connect with our son would be our
norm. The very Autism Spectrum I had spent years working with was now what I
was living with.
The journey began as I sat in
the exam room with my beautiful one year old Tyler, listening to the doctor
talk about how my son was growing well. He was 98th percentile for
both weight and length, and was a strong, healthy boy. And then the doctor
asked me questions about Tyler… Was he communicating his needs? Was he
babbling? Was he interacting with his big brother? How was his temperament?
As I sat there answering the
doctor’s questions, I knew in my heart that my baby boy was not like other
babies. He SHOULD have been gesturing for what he wanted. I knew he SHOULD have
been babbling. He SHOULD have been interacting with his big brother. But, he
wasn’t. Rather, he was screaming for a large chunk of the day, uninterested in
being consoled, without any attempt to show us what he wanted or needed. We
couldn’t cuddle him, couldn’t hold him. No sweet moments of connection.
Sitting at the doctor’s
office, I knew we were heading into a world I was only familiar with in a
professional way. We were heading into the lifetime world of Special Needs. The
Autism Spectrum and all the jargon that comes with it became a very real part
of our daily life. And as we navigated the beginning of this new way of living,
my husband and I learned so much about ourselves, our family, and most
importantly about God.
There were so many times that
I would sit and try to picture our future. But I couldn’t see it. All I could
see was the screaming child and a lifetime of struggles. The initial weeks were
filled with tears and anger and this overwhelming sense of loss. I didn’t lose
my son physically, like I had with our daughter. Rather, I lost the hope and
dreams I had for him. The idea of him getting married someday disappeared.
Succeeding in sports or school or music seemed unimaginable at that moment.
If that wasn’t enough to
swallow, I began to think about what others were going to think about our
situation. What were people going to say about Tyler? How were they going to
look at him? Were they still going to love him? Were our family and friends
still going to love us?
And then in the middle of one
of my hissy fits, God’s presence flooded over me… I could feel a peace I hadn’t
felt in months. I had no answers, no fixes. But I began to see our situation
differently. I began to see that although this time was horrible that there
might just be something greater happening. In that moment, I could see that God
was still at work in us. We still had a future. Our son still had a beautiful
future and a purpose here on earth.
We were not in control. Our
plans were not the plans we were now living out. I fought hard to grab onto any
control I could find, but in the end, I had to cry “uncle”. I had to accept I
had no control over the big things. And I had to make a choice… Either to give
up or to truly hand over my life to God. I chose the latter, and that began a
beautiful journey of love and peace and abundant grace from God.
Throughout the last 7 years,
we have been reminded over and over that control is not ours. Only a month
after our second son turned one, we welcomed son number three. He originally
was not part of our plan, but once he was in our arms, there was no way we would
have wanted things to be any different. Our third son, Zachary brought new challenges,
as we juggled three young children and therapy and normal life. And just when
we thought we had some semblance of control back, God surprised us with our fourth son, Benjamin. We had four boys in four years, and we had certainly learned that
our plans were not quite God’s plans.
As Benjamin reached his
first birthday, we had begun to see some similarities in his development as we
had with our second son. And low and behold, as I sat with him at his one year
well child visit, I heard the familiar words of “he has some significant
developmental delays. Let’s have him evaluated.” But this time was different… I
had already accepted that I had no control. Over the years I had learned to
step back and see what God might be doing. And most importantly, I had learned
that no matter what, God had my back. And He certainly loved me, my husband and
my sons. And He had plans for each of them.
Here’s the thing… I still have
my moments of wanting control (more than I’d like to admit). I still struggle
with fully accepting that God’s plan is way better than anything I could plan.
But, the woman I am today is not the same scared mama that I was five years
ago. I can look back on these years and see a dramatic change in who I am and
in how much I trust God. It didn’t happen overnight. Each day it took taking
that small step of faith to just get out of bed. It took family and friends wrapping
their arms around our family even on the worst of days. It took tears, and
prayers, and yes, some hissy fits, to truly see God in everything. And He IS in
everything.
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